Back to Amplatz today for Sam’s neurology follow up. We hadn’t seen them in a while and there was so thought/ concern he was possibly seizing again so they decided to up his dosage
We are suppose to watch him for a month and the touch base with his nurse. We may revisit doing an EEG as it’s been a long time.
He also had OT with Paige and did quite well playing with different toys and playing with another person (Paige)
I think he could have played the drums the whole time
With the start of the school year, that means early intervention is back doing home visits.
After a struggle to wake up, he finally did well with MaryLou.
They worked on play skills and attempted some walking.
With Monday being a holiday, Sam did not have any therapy on Labor Day.
Then Wednesday he had the night off so a Baz could have some OT with miss Paige.
Thursday though EI came out. It went well but I could really watch as we had Sebastian ‘a preschool meeting.
Dear Sammer Sam
Mom is behind with writing you. Back on Sept 1st, you turned 25 months old
So you are full on into your toddler time.
You are still working hard on therapy.
You seem to enjoy pickled garlic.
You loved everything at the State Fair.
Not much else to report sweet boy
Now that I have had to start having doctor appointments due to Cowden’s and scheduling a surgery to have my thyroid removed, I am behind updating.
There also has not been a lot to update really.
Since those 20 steps Sam hasn’t walked unassisted but he’s doing well with just holding into a finger
In speech, he’s been more vocal which is making Miranda happy. We need to work more on signing and vocalization at home.
In OT, it has been a lot trying to play and share.
Monday was a hit or miss day at therapy for Sam.
In speech, he did well. He vocalized when Miranda asked me to. Signing is not going so well though.
In PT, he really didn’t want to do much but he had a moment where he walked for 20 unassisted steps.
Dear mom here failed to get it in video but I did get 2 steps on video after a epic meltdown
He got the night off from OT on Wednesday so Baz could start
Life is once again getting insanely busy.
Sam is doing fairly well in therapy
Focus on walking in PT and new play skills in OT
Speech he’s working on
Wednesday was a busy day of appointments.
The best appointment even though the most difficult was Sam’s follow up cardiologist appointment.
Trying to keep him still for a echo required 4 people.
The good news from the appointment, his PDA is finally closed basically two years later.
I wasn’t able to help out much in OT as Baz was with us and I bounced between the two but he did great according to Paige .
You are now 2 and here are your stats
Weight 29.3 pounds
Height 32 1/2 inches
Head 21 inches
Your pedi overall happy with how you are doing but is concerned that you maybe on the spectrum so I have it in the works to get on a waiting list to see a developmental pedi.
He is slightly concerned about your bmi but knowing you aren’t walking on your own yet he said to just be mindful of it
We are suppose to follow up in 6 months.
Happy 2nd birthday Sammy
I have more to write later