Neurology and OT


Back to Amplatz today for Sam’s neurology follow up. We hadn’t seen them in a while and there was so thought/ concern he was possibly seizing again so they decided to up his dosage


We are suppose to watch him for a month and the touch base with his nurse. We may revisit doing an EEG as it’s been a long time.

He also had OT with Paige and did quite well playing with different toys and playing with another person (Paige)

I think he could have played the drums the whole time



Behind yet again

Now that I have had to start having doctor appointments due to Cowden’s and scheduling a surgery to have my thyroid removed, I am behind updating.

There also has not been a lot to update really.

Since those 20 steps Sam hasn’t walked unassisted but he’s doing well with just holding into a finger


In speech, he’s been more vocal which is making Miranda happy. We need to work more on signing and vocalization at home.

In OT, it has been a lot trying to play and share.


20 steps

Monday was a hit or miss day at therapy for Sam.

In speech, he did well. He vocalized when Miranda asked me to. Signing is not going so well though.

In PT, he really didn’t want to do much but he had a moment where he walked for 20 unassisted steps.

Dear mom here failed to get it in video but I did get 2 steps on video after a epic meltdown

He got the night off from OT on Wednesday so Baz could start


Wednesday OT and echo/PDA

Wednesday was a busy day of appointments.

The best appointment even though the most difficult was Sam’s follow up cardiologist appointment.

Trying to keep him still for a echo required 4 people.

The good news from the appointment, his PDA is finally closed basically two years later.

I wasn’t able to help out much in OT as Baz was with us and I bounced between the two but he did great according to Paige .


2 year check up


Dear boy,

You are now 2 and here are your stats

Weight 29.3 pounds
Height 32 1/2 inches
Head 21 inches
Bmi 19.5

Your pedi overall happy with how you are doing but is concerned that you maybe on the spectrum so I have it in the works to get on a waiting list to see a developmental pedi.

He is slightly concerned about your bmi but knowing you aren’t walking on your own yet he said to just be mindful of it

We are suppose to follow up in 6 months.