I think these pictures speak for themselves and I am crazy proud of Sam. I am in awe of his determination
First time in his braces and shoes at PT, he stood for 60 seconds. The only real help he got was when his belly touched the chair. Sheila said it was ok for now
Proud momma here today.
Fail on my part on keeping up the updates of last weeks therapy appointments.
I guess the positive in a weird way is there is a not a lot to report for PT. PT last week was not pretty. I don’t know if Sam was to tired, not feeling good, the change of his Keppra putting his out of sorts but he was not himself at all.
Maybe it was a little bit of each. Who knows..
I told Sheila about sitting up by himself and getting himself into the sitting position ( did I post a picture of that yet?I need to do that if I haven’t…)
Near the end of therapy he did sit up for her. She didn’t like the motor pattern of how he did though. So she showed me how should be doing it. I said he has done that before so she was happy to hear that.
Otherwise we really didn’t accomplish much in PT.
In EI/OT Marylou worked on feeding with him. She gave us a nuk brush to try out and then some tips on how to wake up his mouth. Some of those tips are:
-rub or pat his cheeks while making silly noises before feeding
-put some food on the nuk brush and then place that on his lips or into his mouth if he lets us and do that a few times but make sure if gets upset to take it away. She really emphasized now letting it become a negative experience as that will then turn him off of trying to eat.
She then worked on some sitting as well and wants us to try putting toys on his sides so he can practice putting weight on his hands and then be able to go from side to side and back to center.
She also wants us to work on more play, she suggested doing patty cake to get him used to having his hands held (side note here, this is starting to become an issue maybe..as in PT he pitched a fit to when his hands were being held. This is all rather new before he never really had an issue).
Yesterday while I was at work, the orthotist dropped off Sammy’s braces and shoes. I was surprised when he said shoes come with them.
We went with the camo print when we were told the skull print would take extra long.
I need to catch updating about PT and early intervention from Monday.
My dearest Sam,
16 months? time is going by way to fast as usual but I am enjoying seeing you grow up and fight to meet milestones, etc.
You have such determination. Mom is so proud of you.
So what is happening in with you since I last wrote? Big things!
You have sat unassisted for up to 8 minutes at a time. You can pull yourself up to sitting now.
You were fitted for some AFO’s and got a new spio suit.
You are making leaps and bounds in PT as you can tell.
We are starting to try some more foods with you to help *wake up your mouth*
You really seem to like hummus and our slim jim experiment was eventually a success.
You had your first haircut (truthfully I can’t remember if that was at your 15 month or leading up to now. sorry Mom’s a little forgetful these days).
You had your first Thanksgiving and we went to Buca. You also got to meet your Great Grandma P for the first time.
You had some more medical appointments and we have to give you more seizure medication.
You love playing with things now like the Yoga ball. You love the Yoga ball and you still love your laptop.
You and your brother are going to be a force when you get mobile. You love laughing at him and being goofy.
You seem to love the minions.
That’s about it my boy. It’s been a busy month.
A local preemie momma, opened up her blog for November and let preemie parents share their stories. I shares ours.
Check out the other stories and her family’s story. Her son was born at 23 weeks.
The orthotist came by today to fit Sammy for his AFO’s.
I think the experience was more traumatic for Sebastian.
Sam cried while waiting for things to dry. Sebastian cried the whole time and really freaked out when he cut the molds off.
Thankfully it was only a 20 minute ordeal
The pattern he is getting is camouflage and then black & grey shoes .
He is hoping to drop them off Thursday or Friday.
For those who celebrate, we hope you and yours have a wonderful Thanksgiving.
A few extra notes to my earlier post.
I got a call from the Orthotist (sp?) to schedule his AFO fitting.
It’s this Friday!
That was quicker then I expected.
Then MaryLou came out and worked with Sam. Work was busy so I only sat with them for the last little bit. She is trying to assess things for his year meeting in a couple of weeks.
We talked about feeding and I feed him to show her what he does with purées.
She thinks he needs some help. Namely to wake up his mouth. So she is going to work on that when she comes over.
Epic moment in PT and epic mommy fail (I am so mad at myself)
Near the end of therapy, Sheila worked with Sam on sitting.
He struggled a little at first as he was tired. He didn’t seem interested in any of the toys he usually likes. We pulled out a new laptop.
He was very interested in it and ended up sitting unassisted for 4 MINUTES and 5 SECONDS
It was quite the most awesome 4 minutes and 5 seconds, I have experienced.
I snapped a picture of it but when trying to text it to Dan, I deleted it rather then attaching it.
Otherwise in therapy, Sam worked on standing. A good portion of it was spent trying to stand.
We talked about AFO’s again. Sheila feels getting them now would benefit him so she is going to get that ball rolling.
The only negative of therapy today was he has been reverting back to the arching back again and trying to use his back muscles rather then his trunk muscles. She thinks it maybe due to how we have used the yoga ball to help him with sensory input and how we pick up. Sheila gave me some alternative ways and will be having a talk about Sam with OT Paige tomorrow.
So yeah Sam just amazes me these days. Go baby go!
On Monday, I wasn’t sure if Sam was having OT. MaryLou had been out of town and she wasn’t clear if she was coming over or not.
They worked on holding toys and banging together.
And then sitting and a few other things.
At the end they played with Baz and Karen