I think Sam is slowly getting back to himself.
He giggled and played in OT yesterday. He hasn’t done that In like a month.
He also took 2 STEPS UNASSISTED.
It maybe only 2 steps but it was the most awesome 2 steps I have ever seen.
He also stood for only his it holding his shirt lightly. He is slowly on his way to standing is his own and walking.
Yesterday was back to Sam’s normal schedule.
In speech therapy, Miranda worked on language rather then feeding. She focused on signing and working on ma for more.
In PT, Sheila focused on trying to figure out if a walker would be better or a push toy to get Sam walking.
There seems to be pros and cons on both of them. So we will see.
She had him walk with both and also some one handed walking.
Nothing really to report from EI
Sam hasn’t been himself lately thus therapy has been miserable.
After running through possible ideas if what’s wrong, it turns out the poor little guy is way beyond backed up again. I hate seeing him so miserable.
Here’s a few of his happier moments
He’s starting to get a little back to himself. So hopefully I can get better at updating but I also now get to have a bunch of medical testing and appointments as it’s official I have the PTEN mutation and Cowden’s
So yet again a bit behind updating Sam’s therapy appointments.
This past Monday was a rough one. Sam didn’t sleep much all last weekend so he was a bit mess at Speech Therapy. Miranda struggled to get him to eat, to not scream bloody murder when she tried to get near him, etc.
It was a rough appointment and not much was accomplished.
For PT, we had the surprise of seeing his old PT Sheila. Shannon was there but being she is very pregnant she didn’t think she could bend down and work much with Sam. So working with Sheila was more just her getting to know Sam again.
In OT on Wednesday, he was a bit better. we went earlier then his usual 5pm appointment being I had the day off work.
He actually played a little and worked well with Paige and then he did some walking
2 years ago today I was told I needed to get down to the University of Minnesota ASAP. My maternal fetal medicine doctor thought I was going to lose Sam.
I needed to see if they could place a cerclage.
Thankfully they could and then we had a talk with the doctor and the NICU how I needed to make it to 24 weeks.
We made it 26 weeks and 3 days.
Now he’s knocking on 2 years old door.
He amazes me everyday
On Monday, Sam had speech therapy after missing the previous Monday because Miranda was out sick.
He did quite well as his mouth really seemed to wake up after she did the Beckman exercises. He tried graham crackers and actually self feed one of them.
In PT, Sam basically graduated to a walker rather then a gait trainer.
Shannon really didn’t work anything else with him as all he wanted was to move!
and then on Wednesday for OT, Sebastian came with us too and he helped Sam with his walking.
On Tuesday Sam has his follow up with the eye doctor. It was basically his year follow up even though he was seen about 6 months ago when the NICU follow up clinic has concerns about lazy eye.
Sam didn’t like the appointment at all but I don’t blame him. I am not to keen of eye appointments even all these years later of wearing glasses.
Anyways, the doctor said that Sam’s eyes are look good structurally and that his eye sight seems good too. So, he doesn’t feel Sam needs glasses at this point.
He wants to see him in year and then will make a decision after that as to often we need to see him if even at all.
That was great to hear about his eyes!
Life is getting away from me and I can’t keep up here lately with all of Sam’s therapy appointments.
Last Wednesday in OT, he had quite the big day really. He normally needs a lot of prompting and help to play. When he plays he likes to just swipe at the toys. On Wednesday he actually put things into something.
He also played the drum without really any help which is not typical for him.
and then walking, a lot of walking with very little assistance
He did so great! It we aren’t sure why the sudden change. His OT said he was like a different kiddo