So I have been trying to figure if the University has Sam’s test results yet as it’s been over 6 weeks. I do try and respect, it’s a busy place and that they also had to send out the results. However they did say it would be 6 weeks at the latest and that we would either be called or receive a letter, I feel like it’s in my right as a parent to be concerned that we had neither at 8 weeks and nearing 9 since he was tested.
I called a few times and never really got to talk to the counselor but left messages and was told by the nurse coordinator that she couldn’t see anything beyond it’s processing.
Finally after not getting any returned messages from the counselor, I called patient relations and discussed the situation with them.
Go figure, about an hour later I get a call from the counselor. She said that the lab they sent it to is so backed up at the earliest we would get them is March 20th. She then told me that I shouldn’t think that they were withholding test results. I told her that I never said you were and I was just wondering what the hold up was. I just wanted a little communication.
She then told me that it was only 7 weeks and 3 days since the testing by how they count it. Well I am sorry I didn’t realize you don’t include weekends and such.
So I hung up the phone and went about my day until I just snapped and was like that kind of talk was unprofessional to me so I called and requested a counselor. The manager of the clinic said she understood and was thankful for my transparency and honesty with my issues.
So now we still wait for the results.
The good news now, Sam doesn’t have to see neurology for a while. He had a 3 month follow up for being on the full dosage of Keppra that they like people his age to be on. I guess if you keep going up then you run into side effects and such.
The doctor was pleased with how he is doing and said to keep an eye on the eye issue thing he has been doing. if it gets longer, or if he falls over after having this eye thing happen then we need to call him. Otherwise the doctor just said to call Lori the nurse monthly for a while as a check in.
I asked about MRIs as he mentioned last time he would possible need on in the spring to see how things look, the doctor said that he doesn’t see a need to do one in the near future. If the eye thing keeps up and gets worse then maybe, but otherwise no MRIs.
So yet another busy day with Sam.
Oh and his follow up xray on his stomach he had recently as well for his crazy constipation showed signs of improvement so that was nice to see. He is now mostly full of gas rather then stool.
His pedi said that with his low tone and such it could take up a few months for his bowls to get back to normal and will appear to be distended for a bit.