PT and EI/OT

Due to another appointment, we got a late start with PT.

I will admit Sam seemed to do better at 9 rather then the usual 8am.

The therapist and I talked as we weren’t there last week.

She did a lot of rolling with him. He seemed to just want to roll anyways so it was probably for the best. He did scare me when he tired rolling while on the yoga ball.

Then she worked on tummy time with Sam. She was impressed with how well he is doing but we need to work on keeping his arms under him to build his arm strength then he can work on pushing up.

Shannon brought some hip helpers but they were to big but I got the general idea of how to use them.

Then she did a lot of sitting and head exercises with him.

We need to work on head exercises as his right side is weak and sitting along with the usual.

While doing some of the sitting exercises, Shannon noticed Sam’s legs were turning purple. She wasn’t sure why so she suggested calling the ped.

When we got home I called. The first nurse thought we needed to be seen ASAP. Then she talked to the doctor.

Plan of action: monitor today and see doctor tomorrow. I guess I am glad I took all day off tomorrow.

Then it was time for EI/OT.

Teacher Karen brought some hip helpers that actually fit so she worked on sitting with him and again his legs turned red then purple.

We are all assuming its some sort if circulation issue. Just not sure what can be done. I guess we will figure it out tomorrow.

She did some rolling and playing with Sam.

Then we did a little paperwork with the change in his plan and goals.

Them she left and I was surprised she didn’t work a whole hour with him.

Now tomorrow it’s visits with urology, renal ultrasound and then pedi to see what’s going on with his legs.

The schedule for the week

Busy Monday., x
PT at 9am and OT at 1

Tuesday
Appointment with urology at Amplatz.
They are going to be checking his kidneys and the kidney reflux

Then last night of evening with the tots for the bros p.

The rest of the week is appointment free .

Allergy Test

So today, Sam went to see the allergy doctor. The NICU follow up clinic suggested it and his pedi thought it was an good idea.

I was on the fence about going but figured it was probably for the best in case he does have allergies and it then would explain his constipation issues and skin issues.

He remained fairly happy during the test.

In the end it probably was a waste of time and I feel bad putting Sam through it.

He didn’t have a big reaction to much except a slight reaction to milk. So just like Baz, he is sensitive to milk.

So she thinks that it some of the issues for his constipation.

Her thoughts were either keep up what we are doing which is slowly transition to soy or switch to something like Gerber with whey in it or Gerber with probiotics.

She said by looking at his records and hearing me talk about his NICU days, his issues really are just such a immature stomach.

She also really pushed getting some rice cereal and/or fruit in his diet when he’s 6 months adjusted. She feels more fiber will help.

I don’t know….

Oh and the skin issues, just really sensitive skin.

And last he is a freaking chunk, 19 pounds 13 ounces.

In a little over 9 months he has packed on 17 pounds and 1 ounce. I am happy that he’s doing good weight wise. I just wish we could figure out what to give him so he’s not so stopped up.

I hate the miralax, prune juice and when he needs it suppository combo.

EI/OT 6 month evaluation

Today was Sam’s EI/OT and evaluation as well. The OT wasn’t going to assess him till next month being that is. 6 months since he started but being PT inquired about more then once a month OT, teacher Karen brought Mary Lou with.

We talked briefly about medical updates and what PT has been doing which day was canceled.

Then they both worked with him.

They did some tummy time and commented he’s doing better with that.

He’s still doing good with tracking things.

They did note he needs more work with his tone which the OT said I know that already.

So in the next. 6 months they want to see improvement in his sitting, grabbing, playing with toys and sounds he makes.

So he is officially bumped up twice a month. After a few visits if there does not seem to be much improvement then we will change it to once a week.

So we scheduled visits through the rest of the summer.

And then we talked about Baz. Teacher Karen is going to write a speech therapist referral for him. Being he is getting close to 2 she thinks he should get evaluated.

Happy Mother’s Day

Originally I was planning on doing a post about being a mom today but time isn’t my friend today so

HAPPY MOTHER’S DAY to all the moms out there and Dads that pull double duty.

Results

This afternoon Sam’s pedi called to discuss some things about Sebastian but also wanted to give me the results of his head ultrasound.

As everyone suspected, Sam just has a big noggin.

The pedi wasn’t concerned but wanted to check. We weren’t to concerned but I did have that tiny concern in the back of my mind.

He said he has the right amount of fluid around his brain and no brain bleeds either. I didn’t know they were looking for bleeds as he was clear in the NICU and I didn’t think of the possibility of one later on.

So yay big head!

Cuteness

So to off set the recent posts about me, lets get back to Sam.

Cuteness

Mom Moment…

So just a quick state of me update then we will get back to blogging about Sam. I mean this us about him and not me.

I had my first therapy appointment today.

I am still processing it but on the other hand a lot I already knew.

Namely taking care of myself which I don’t know how to do.

She said I need to get back to something I enjoy. My thought is Bellydance class but I don’t know how as time and transportation is an issue.

She said I need to work on stop pushing myself so hard when it comes to things like work.

She said I need to shed guilt. How do you that?

I guess all in all I need to change a lot of how I function and being I have been like this for a long time I don’t know how to make these changes.

I need to make them though so I can be a good mom and wife.

She does not think I am suffering depression or anything.

Learned my lesson

So a quick state of me post…

Awhile ago, I made that therapy appointment but canceled due to work.

I was going to reschedule but then called insurance to find out if therapy was covered.

This is where I fell off the wagon….

I never made a appointment. With work being short staffed and the boys having a lot of appointments I figured I am hanging on. I don’t need an appointment.

I learned my lesson that no I really do need an appointment.

I had my first anxiety attack tonight. Trying to get my stuff together for over an hour, had trouble breathing, was shaking….

I called my insurance nurse line.

She thinks I should be an anti-depressants and see a therapist.

So yeah I have learned my lesson. I need to talk to someone, I need to figure out how to take care of myself along with everyone else.

I need to find some balance between work, home and appointments.

Ultrasound

So today after PT was Sam’s ultrasound.

The tech had some problems trying to find the sift spot but eventually got a good number of pictures. I don’t know what they showed as she didn’t say anything.

Then the tech said she was going to talk to the doctor.

She came back and said the radiologist will read it and get us the results in a few days. I asked if that meant things were ok and she said she didn’t know the results.

I am guessing his noggin is just big and nothing to worry about. I would think if there was something in the ultrasound they would have said something.