Behind yet again

Now that I have had to start having doctor appointments due to Cowden’s and scheduling a surgery to have my thyroid removed, I am behind updating.

There also has not been a lot to update really.

Since those 20 steps Sam hasn’t walked unassisted but he’s doing well with just holding into a finger


In speech, he’s been more vocal which is making Miranda happy. We need to work more on signing and vocalization at home.

In OT, it has been a lot trying to play and share.


20 steps

Monday was a hit or miss day at therapy for Sam.

In speech, he did well. He vocalized when Miranda asked me to. Signing is not going so well though.

In PT, he really didn’t want to do much but he had a moment where he walked for 20 unassisted steps.

Dear mom here failed to get it in video but I did get 2 steps on video after a epic meltdown

He got the night off from OT on Wednesday so Baz could start


Wednesday OT and echo/PDA

Wednesday was a busy day of appointments.

The best appointment even though the most difficult was Sam’s follow up cardiologist appointment.

Trying to keep him still for a echo required 4 people.

The good news from the appointment, his PDA is finally closed basically two years later.

I wasn’t able to help out much in OT as Baz was with us and I bounced between the two but he did great according to Paige .


2 year check up


Dear boy,

You are now 2 and here are your stats

Weight 29.3 pounds
Height 32 1/2 inches
Head 21 inches
Bmi 19.5

Your pedi overall happy with how you are doing but is concerned that you maybe on the spectrum so I have it in the works to get on a waiting list to see a developmental pedi.

He is slightly concerned about your bmi but knowing you aren’t walking on your own yet he said to just be mindful of it

We are suppose to follow up in 6 months.


Mondays Therapy

Sam’s been in a better mood so therapy is going better.

In speech , Miranda worked on some language skills and trying to get Sam to sign.

In PT, it was all about walking and telling me we need to push braces more. Mom fail on that lately :(

I had to talk to EI in regards to Baz so I wasn’t around them to much.

He did well and I have a few videos but being in my phone I will have to share those in a different post.




2 steps

I think Sam is slowly getting back to himself.

He giggled and played in OT yesterday. He hasn’t done that In like a month.

He also took 2 STEPS UNASSISTED.

It maybe only 2 steps but it was the most awesome 2 steps I have ever seen.


He also stood for only his it holding his shirt lightly. He is slowly on his way to standing is his own and walking.


ST, PT, and EI

Yesterday was back to Sam’s normal schedule.

In speech therapy, Miranda worked on language rather then feeding. She focused on signing and working on ma for more.

In PT, Sheila focused on trying to figure out if a walker would be better or a push toy to get Sam walking.

There seems to be pros and cons on both of them. So we will see.

She had him walk with both and also some one handed walking.

Nothing really to report from EI